AMANDA Pearce Higgins is taking to the cold waters of the English Channel next month to raise awareness for Phelan-McDermid Syndrome.
Alongside her friend, Tom White, they will complete the anticipated 16-hour swim as a two-man relay and will set off from Dover during the first week of October.
Amanda – a supporter of Chinnor RFC and a former Board Member – is raising money for PMSF UK, which provides support to people with Phelan-McDermid Syndrome.
A rare genetic condition, Phelan-McDermid Syndrome is caused by a deletion or loss of the terminal segment of chromosome 22. Individuals have developmental delay and often do not develop functional language and can have autism spectrum disorders. All people with Phelan-McDermid Syndrome have difficulty communicating; many are non-verbal and have issues around cognitive development and mobility and most have low tone on their limbs, requiring additional care to support their daily lives.
If you would like to support Amanda, please click HERE.
